Liven up the website for people with multiple sclerosis

I am a young woman with MS, but most importantly, I am a diehard fan of life! I founded the “Life with MS” project, where people find support and much more. I would like to extend the website, complete animated video and introduce a new association.

  • Badges, badges, badges wherever you look :)

  • Hope in the sweet the starlet from my moms

  • Only in the Czech language

  • A series of magnets, which tells the

  • Magic pads that relief not only from the pain

  • Do not consider spice, read the composition :)

  • Only in the Czech language

  • What not to miss in lentil soup? Yet the lens!

  • Go back to the summer

  • Only in the Czech Republic and Czech language

  • Only in the Czech Republic and Czech language

  • Only in the Czech Republic (in Prague)

  • Only in the Czech Republic (in Prague)

  • Only in the Czech Republic and Czech language

  • Only in the Czech Republic (in Prague)

  • Only in the Czech Republic and Czech language

  • Bring the characters in our video

  • Detailed view, see the News.

EUR 2,400
pledged of EUR 2,304

104%

104% completed

104 contributors pledged

Community, Education

Praha, Hlavní město Praha, Česká republika

Show all rewards

 “The people who get on in this world are the people who get up and look for the circumstances they want.
And, if they can't find them, make them.” George Bernard Shaw

ABOUT THE “LIFE WITH MS” WEBSITE PROJECT

Originally, this was a small blogging effort which has changed over time. It has gained momentum and mere stories were no longer enough. Therefore, I have added information about multiple sclerosis, and much more (magazine articles, discussion forum, etc.) As time goes by, new objectives have been added to the project and my effort now focuses on awareness and activities. I am trying to be flexible in responding to users’ wishes and needs, but I can no longer do without professional programming.

I’m moving forward, no step back!

ABOUT THE CAMPAIGN

The most important objective is redesign of the website, which will bring streamlining and acceleration. At the same time, the website will offer a number of attractive opportunities and activities for all users, not just patients.

The website should become a starting point for the next step, which will be the establishment of an association devoted to encouraging our people to take part in meaningful activities (entertainment, sports, trips, helping nature, animals, children, senior citizens, etc.)

WHERE WILL THE MONEY GO?

The funding will cover redesign of the website. This includes the programmer, graphic designer, purchasing licenses. The new website should include advertising, consulting, volunteering, including a map of volunteers and those in need. A substantial part will be a separate social network for those who do not wish to declare their disease officially (e.g. using their FB profiles, etc.) These people are also entitled to a place to talk about what worries them without having to fear anything.

60.000 CZK will be enough to carry out our plans for the development of a professional, good-looking and fast website with a large number of user options. Anybody can become a user. Healthy or sick - this does not matter at all. Just a desire to live and to live with us!

Of course the amount will not cover only the website, graphic design and licences. It will also cover completion of an animated video, which shows a story of three young people and breaks down the myths about multiple cerebrospinal sclerosis. This video should be the first major endeavour of the new association.

And last but not least, the funding will cover the rewards for you. These will be delivered as soon as possible.

I have already taken the first step - the project and everything around it will get a new logo

WHY HITHIT.COM?

At the moment a lot of things depend on money. No matter how much effort I put into this, professional work requires professionals. But I am just an ordinary girl with very limited possibilities to raise funds required for further development and growth of the project. 

Now, you can help our dreams come true so that all patients and their families know that they are not alone.

For those who want to know more...

ABOUT US, ABOUT ME, WHY HAVE I LAUNCHED THE PROJECT

I am one of the nineteen thousand people in this country who have been diagnosed with multiple cerebrospinal sclerosis. However, the actual number is estimated to be several times higher, because many people overlook and ignore early symptoms.

We are the same as you. You meet us in the streets and most of us are no different. Yet, after injuries, multiple sclerosis is the second leading cause of disability among young adults.

Although many of you do not know anything about us, you knowingly or unknowingly attach a stigma to us, attribute different symptoms to our diagnosis, and force us to live in seclusion, to fear admitting the diagnosis to our employer, friends, and unfortunately often to our family members.

The disease is not about what we hear in the media, it is not about heroic stories on the one hand and depressive mushy stories on the other. As if there was nothing in between. But the opposite is true.

Most of us live a normal ordinary life, and the public must understand that we are no different. And I am trying my best to communicate this “life” among people. And to ensure new patients that their life will not change dramatically unless they themselves allow the disease to dominate over them. 

And who am I?

My name is Vendulka Bočková, I am 32 years old, simply I am a young woman who was almost a decade ago diagnosed with multiple cerebrospinal sclerosis. Although over time the disease has put me in a wheelchair, limited motor skills in my fingers and strongly affected my eyes, I have never given up or resigned because in the first place I am a diehard fan of life.

How I taught a dog not to be afraid of the wheelchair. We have practised for this “snapshot” for nearly an hour.

WHY HAVE I STARTED THE PROJECT?

As I wrote earlier, the project began as a small blog, which has grown over time into a website. The original stories changed into informing patients, their families and the public about the disease, which is still veiled in a lot of myths. My effort was to present information in a human language, without terminology in which a normal person gets quickly lost. A great objective was to share ordinary life stories.

Being a patient myself, I notice every mention of the disease. And I have a feeling that multiple sclerosis is sufficiently communicated among the public. But when a young man tells me that he did not get a job because his diagnosis means forgetting (in the opinion of the potential employer), a scatterbrained woman in a market stand comments her distractedness by saying “I think I have that multiple sclerosis”, and a graphic designer, when asked to produce something on the topic, sends a picture of a laughing old woman, it is clear to me that the public still does not have the required knowledge and we still live in a world of myths.

Therefore, I am trying to show to people that this is not what the disease looks like, that this is not what the disease is about. That we are no different, and although we need medicine, rehabilitation, and plenty of rest, we still live an active life and have the same value. Often it is necessary to explain to family members that even though the disease is not visible, it does not mean that we are always well, we just try to conceal it and live on.

To give patients the energy they need, hope, a positive approach to life. To give them a helping hand, to present new possibilities and to show that they are not alone.

“Heaven has given human beings three things to balance the odds of life: hope, sleep, and laughter.” Immanuel Kant

News

Oct 10, 2016 Due to great popularity, further paintings have been added

Because you have shown great interest in the paintings by Gabriela Sedláčková, we have added a quintet of her graphic paintings: "I Love The Rain" ("Miluji déšť") "Coral summer" ("Korálové léto") "Stripes" ("Pruhovaní") "Walk the summer with me" ("Projdi se mnou léto") "Step out of your box" …

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Sep 29, 2016 Tomáš Zahálka – "barefoot runner" cares for us too

The project was also supported by Tomáš Zahálka, an amazing person who runs barefoot in a kilt around our country and supports a number of various activities and organizations with his jogging. You can choose the rewards that were given to us by his sister – a beautiful eBook (only in Czech…

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Comments

Choose reward for your contribution

  • 23 Just for the good feeling

    Do you like my work, my idea, or do you just want to support a website project so that it can help other people even more and you are not interested in any of the rewards? Then this is the right place for you. 

    Of course you can contribute even more, we are not going to be angry :)

    Reward delivery: Not specified

    EUR 1.92
    (CZK 50)
  • 7 Do you want a badge?

    Forget a boring logo. The articles are prepared for a pilot project “Campaign against loneliness”. You can be the first to proudly wear the badge. And for a discounted price. 

    In the comments please specify which text you want. 

    You can choose from the following texts:
    • Campaign against loneliness
    • You are not alone
    • I boycott loneliness
    • I am against loneliness
    • Loneliness has no place here
    • STOP loneliness

    Reward delivery: In a quarter

    EUR 2.88
    (CZK 75)
  • Sold out!! Linzer tarts

    Not only Christmas is a time of sweets. Sweeten your day with soft Linzer tarts with currant jam. Made at home, made with care, only for your sweet tooth and this project. 

    One package weighs about 300 grams.
     

    Reward delivery: In a quarter

    EUR 3.84
    (CZK 100)
  • Sold out!! Balm syrup (500 ml)

    Balm improves digestion, decelerates heart rate and decreases blood pressure. And tastes great. Bring balm to your life with our home-made syrup.
     

    Reward delivery: In a quarter

    EUR 7.68
    (CZK 200)
  • 5 from 10 eBook Life of Béďa the Cat – Part 1

    Read to you children a cheerful and adventure story about an indolent city cat Béďa, who suddenly finds himself in the countryside in unfamiliar situations. Or let your children read for themselves.

    These rewards are only in the Czech language.
     

    Reward delivery: In a quarter

    EUR 7.68
    (CZK 200)
  • 17 from 20 Star of hope from my mother

    Mothers of MS patients are waiting and hoping for anything that would stop the disease of their children. My mum lovingly put her hope into stars made of beads and you have an opportunity to buy a piece of her care for me.
     

    Reward delivery: In a quarter

    EUR 7.68
    (CZK 200)
  • Sold out!! Mint syrup (500 ml)

    Mint has such a huge variety of positive effects that they cannot be all listed in a short text. Bring mint to your life with our home-made syrup.
     

    Reward delivery: In a quarter

    EUR 7.68
    (CZK 200)
  • Sold out!! Magic cherry cushion

    Tomáš Zahálka, the barefoot runner in a kilt, who helps wherever he can, is one of our supporters. How does he relieve stress and muscle pain? Using these cushions. Imagination has no limits. 

    One package contains 2 pads.
     

    Reward delivery: In a quarter

    EUR 9.60
    (CZK 250)
  • 5 Series of magnets

    Magnets can also tell a story of the “Campaign against loneliness”. And together make a picture of how the lives of patients with multiple cerebrospinal sclerosis are affected. 

    Each package contains 7 magnets. Not even the magnets want to be alone.
     

    Reward delivery: In a quarter

    EUR 9.60
    (CZK 250)
  • 17 from 20 Recharging spiced tea with caramel stirrers

    Black tea need not always be boring. This mixture is based on my long-term experimenting with flavours. The result is a wonderful tea that recharges energy. Taste my impeccable tea.
     

    Reward delivery: In a quarter

    EUR 11.52
    (CZK 300)
  • 5 from 5 Extra classes of Czech language for 1st stage of elementary schools

    It is very annoying to flounder in your mother tongue. A teacher with 25 years of experience with children in the first stage of elementary school will help your kinds and our project. 

    Length of extra class: 60 minutes (unless you agree otherwise with the teacher)
    Method of teaching: via Skype (or in person in North Bohemia)
    Date: upon agreement

    These rewards are only in the Czech language.

     

    Reward delivery: In a quarter

    EUR 11.52
    (CZK 300)
  • 9 from 10 Mixture for non-traditional lentil soup in a glass jar

    It was already the Roman natural scientist Pliny who prescribed lentil soup as a tranquillizer. Lentil contains a lot of healthy things. You will receive a wonderful glass jar with all necessary spices. 

    Personal pick-up in Prague recommended, especially if you want to give the soup as a gift.
     

    Reward delivery: In a quarter

    EUR 13.44
    (CZK 350)
  • 22 from 30 Well-being box

    The content of the box will remind you of the summer even in dreary weather. Music, scented candle, citrus drink, a small gift plus nice texts, all originally wrapped.
     

    Reward delivery: In a quarter

    EUR 13.44
    (CZK 350)
  • Sold out!! Free admission to a first aid course

    More than 75 % of the population do not know how to provide first aid. Learn from our lecturers - professionals. During a 2 to 3-hour tutorial they will teach you everything you need to know to save a human life. 

    Venue: Prague
    Duration: 2-3 hours
    Date: to be selected from available courses

    These rewards are only available in Prague (CR) and only in the Czech language.

     

    Reward delivery: In a quarter

    EUR 17.28
    (CZK 450)
  • 1 from 5 Handyman

    From time to time, everybody needs a handyman. For our campaign, a skilled craftsman offers his services. If you have something that needs to be fixed, do not hesitate. 

    Venue: Prague and Central Bohemia
    Duration: 90 minutes
    Date: upon agreement

    These rewards are only available in Prague (CR) and only in the Czech language.

     

    Reward delivery: In a quarter

    EUR 17.28
    (CZK 450)
  • Sold out!! Author's picture "Stripes"

    The author digital painting of approximately 30 x 30 cm, backing board, ready for hanging. 
    Author: Gabriela Sedláčková – the author who combines graphics, social and cultural anthropologies, volunteerism, cultural events and other ideas that come in her way in her life (family company AVALON - advertising studio, Kolín 3)

    Reward delivery: In a quarter

    EUR 19.20
    (CZK 500)
  • Sold out!! Author's picture "Walk the summer with me"

    The author digital painting of approximately 30 x 30 cm, backing board, ready for hanging. 
    Author: Gabriela Sedláčková – the author who combines graphics, social and cultural anthropologies, volunteerism, cultural events and other ideas that come in her way in her life (family company AVALON - advertising studio, Kolín 3)

    Reward delivery: In a quarter

    EUR 19.20
    (CZK 500)
  • Sold out!! Author's picture "Coral summer"

    The author digital painting of approximately 30 x 30 cm, backing board, ready for hanging. 
    Author: Gabriela Sedláčková – the author who combines graphics, social and cultural anthropologies, volunteerism, cultural events and other ideas that come in her way in her life (family company AVALON - advertising studio, Kolín 3)

    Reward delivery: In a quarter

    EUR 19.20
    (CZK 500)
  • Sold out!! Author's picture "I Love The Rain"

    The author digital painting of approximately 30 x 30 cm, backing board, ready for hanging. 
    Author: Gabriela Sedláčková – the author who combines graphics, social and cultural anthropologies, volunteerism, cultural events and other ideas that come in her way in her life (family company AVALON - advertising studio, Kolín 3)

    Reward delivery: In a quarter

    EUR 19.20
    (CZK 500)
  • Sold out!! Author's picture "Alegria"

    The author digital painting of approximately 30 x 30 cm, backing board, ready for hanging.
    Author: Gabriela Sedláčková – the author who combines graphics, social and cultural anthropologies, volunteerism, cultural events and other ideas that come in her way in her life (family company AVALON - advertising studio, Kolín 3)

    Reward delivery: In a quarter

    EUR 19.20
    (CZK 500)
  • Sold out!! Author's picture "Nenasytnost" ("Greed")

    The author digital painting of approximately 30 x 30 cm, backing board, ready for hanging.
    Author: Gabriela Sedláčková – the author who combines graphics, social and cultural anthropologies, volunteerism, cultural events and other ideas that come in her way in her life (family company AVALON - advertising studio, Kolín 3)

    Reward delivery: In a quarter

    EUR 19.20
    (CZK 500)
  • Sold out!! Author's picture "Poznej svá křídla" ("Know your wings")

    The author digital painting of approximately 30 x 30 cm, backing board, ready for hanging.
    Author: Gabriela Sedláčková – the author who combines graphics, social and cultural anthropologies, volunteerism, cultural events and other ideas that come in her way in her life (family company AVALON - advertising studio, Kolín 3)

    Reward delivery: In a quarter

    EUR 19.20
    (CZK 500)
  • Sold out!! Author's picture "Andělé" ("Angels")

    The author digital painting of approximately 30 x 30 cm, backing board, ready for hanging.
    Author: Gabriela Sedláčková – the author who combines graphics, social and cultural anthropologies, volunteerism, cultural events and other ideas that come in her way in her life (family company AVALON - advertising studio, Kolín 3)

    Reward delivery: In a quarter

    EUR 19.20
    (CZK 500)
  • Sold out!! Author's picture "Mi guarda…"

    The author digital painting of approximately 30 x 30 cm, backing board, ready for hanging.
    Author: Gabriela Sedláčková – the author who combines graphics, social and cultural anthropologies, volunteerism, cultural events and other ideas that come in her way in her life (family company AVALON - advertising studio, Kolín 3)

    Reward delivery: In a quarter

    EUR 19.20
    (CZK 500)
  • Sold out!! Author's picture "Step out of your box"

    The author digital painting of approximately 30 x 30 cm, backing board, ready for hanging. 
    Author: Gabriela Sedláčková – the author who combines graphics, social and cultural anthropologies, volunteerism, cultural events and other ideas that come in her way in her life (family company AVALON - advertising studio, Kolín 3)

    Reward delivery: In a quarter

    EUR 19.20
    (CZK 500)
  • 1 from 5 Chinese massage

    Chinese energy massage belongs to Chinese medicine just like acupuncture and acupressure. Very effective, but less known in our country. Uses a system of acupuncture lines and points. 

    Venue: Prague
    Duration: 60 minutes
    Date: upon agreement

    These rewards are only available in Prague (CR).

     

    Reward delivery: In a quarter

    EUR 38.40
    (CZK 1,000)
  • 3 from 5 Rehabilitation

    Rehabilitation is crucial to patients with multiple sclerosis. Come and try out the Vojta therapy, balance training on an air pad and much more. Stretch your body, you will have more energy. 

    Venue: Prague
    Duration: 60 minutes
    Date: upon agreement

    These rewards are only available in Prague (CR).

     

    Reward delivery: In a quarter

    EUR 38.40
    (CZK 1,000)
  • 1 from 2 Ride a handbike in nature

    Can you walk on your hands? Riding a handbike can be compared to walking on the hands. Try out riding a handbike in a difficult forest terrain, in mud and needles, which had until recently been inaccessible for wheelchair users. 

    Venue: Prague, Klánovice Forest 
    Duration: 2 hours
    Assistant present all the time

    These rewards are only available in Prague (CR).

     

    Reward delivery: In a quarter

    EUR 57.59
    (CZK 1,500)
  • 5 from 5 A day in a wheelchair

    Try out a regular day of a person in a wheelchair. Take a seat and try out a trip through Prague as well as everyday activities (shopping, cooking, public transport). You will not be allowed to stand throughout the whole day, but we will help you. 

    Venue: Prague
    Duration: all day
    Date: upon agreement

    These rewards are only available in Prague (CR).

     

    Reward delivery: In a quarter

    EUR 76.79
    (CZK 2,000)
  • 1 from 2 Race mate

    Do you like riding a bicycle and doing good deeds? This reward is perfect for you! A great opportunity to accompany a racer. You will become a mate, you will help somebody achieve his/her goal, you will experience joy and excitement. 

    Venue: as per chosen race
    Duration: all race + necessary preparations
    The reward includes refreshment

    These rewards are only available in Prague (CR).

     

    Reward delivery: In a quarter

    EUR 86.39
    (CZK 2,250)
  • 3 from 5 Patron of the project

    Do you want to become the patron of the project? Do you want to see your name and corporate logo publicized on our website and at our events? Do you always want to be informed about upcoming events, have a free access and VIP service? Then this is for you. 

    Everything to be arranged (in person, by phone or online)
     

    Reward delivery: Not specified

    EUR 134.38
    (CZK 3,500)